Comments for Animal Housewife

Comment on How I was diagnosed with angioimmunoblastic t-cell lymphoma by Milford Okken

Milford Okken — Fri, 07 May 2010 23:33:49 +0000

Aloha, I like your site! I will be back again.

Comment on I have angioimmunoblastic t-cell lymphoma by Edelzinta Afonso

Edelzinta Afonso — Mon, 19 Apr 2010 16:29:50 +0000

Gostava de saber a evolução dos casos que vieram parar a este site. Eu já acabei os tratamentos de quimioterapia e de anticorpos monoclonais, não foram muito faceis. Agora vou observar de 3 em e meses. Espero que todos vocês tenham boas notícias. Partilhem. É bom para todos.

Comment on Merry Christmas by Beth (Friday)

Beth (Friday) — Mon, 28 Dec 2009 05:44:44 +0000

What a wonderful post.
Good things happen to good people, Sue !!!!

Comment on AFTER Angioimmunoblastic T-cell Lymphoma by Carolyn

Carolyn — Sun, 29 Nov 2009 16:59:33 +0000

Sue,
I was diagnosed in Sept. this year with Angioimmunoblastic T cell Lymphoma. Just completed round 2 of chemo. Not much progress to date. I just wanted to say Thank You for blogging. You look to be about my age, we share an attitude and It helps to know there is hope. I too have heard “bad one” however I am not aware of a “good” cancer and I too am “badder” than “this” soon to be “that” disease. Please continue to share your hope with those of us still battling.
By the way, I am so glad you have all your furry friends for support. I don’t know what I would do or how I would get through a day without mine.
Wishing you continued Blessings,
Carolyn

Comment on AFTER Angioimmunoblastic T-cell Lymphoma by Michelle

Michelle — Fri, 30 Oct 2009 20:24:06 +0000

So happy to hear ur story. I love your site and I love your personality and who you are and how you have chosen to blog about your illness, it has helped so many people im sure, including me. My favorite person on the planet just got diagnosed with stage 4 Angioimmunoblastic Tcell Lymphoma. Grandma is over 90 and normally healthy as can be. She takes public transportation to the grocery store and buys groceries almost everyday on her own and cooks and takes care of grampa…. Doctors are always astounded that there is never anything wrong with her. She is old fashioned and always eats food cooked from scratch and rarely has anything artificial. That is why we were shocked when she was diagnosed with AITL.

Ive cried everyday for her since she got diagnosed two weeks ago, and yesterday she had her first dose of chemotherapy. Stanford doctors say she is too old for stem cell transplantation. I am hopeful she will beat it and your site has helped so much. I am so glad you refused to do further treatments and that u are doing so well.

Best wishes,
Michelle

Comment on Barney by Amy

Amy — Fri, 16 Oct 2009 02:04:09 +0000

Awwww, he’s so cute and getting so big!

Comment on How I was diagnosed with angioimmunoblastic t-cell lymphoma by Tara V

Tara V — Sat, 26 Sep 2009 17:27:03 +0000

The doctors feel that the CHOP stopped working somewhere between the 4/5 session. He was INSTANTLY sick again. He has never felt better unfortunately. Very sad. He was in hospital AGAIN last night for transfusion…he can’t keep his RBC up….

Comment on How I was diagnosed with angioimmunoblastic t-cell lymphoma by Tara V

Tara V — Thu, 24 Sep 2009 14:07:46 +0000

My father in law was diagnosed back in February with Angioblastic T-Cell Lymphoma. He too had his bone marrow tested and did not have it there. At the time the doctor recommended 6 sessions of CHOP with the Prednisone given intermittently. He had a scan after the 4th treatment and it looked great, the lymph nodes shrunk etc. At this point he returned to the UK (he has a home in Florida and England). He finished his last two Chop treatments and was hopeful. He then landed in the hospital because he had low blood pressure and anemia and collapsed (I think its called syncope)?? At that time they did a scan and saw something suspicious so the ordered a PET scan. Unfortunately, the lymphoma had returned with a vengeance. It was now a stage IVb, and had spread to his bones, bone marrow and lungs. They gave him a now terminal diagnosis. They said he now has 3-5 months with no treatment or aprox. 10 months with oral chemo, pred and some other meds. He opted for that and again wound up in the hospital for syncope. Now he is off all the chemo meds because he had an upper respitory infection, and had to go on antibiotics.

He hopes to return to Fla in November. We have been in contact with Tampa Moffit and MD Anderson in Texas. We feel at a loss and haven’t meat anyone else with this condition. We feel like a clinical trial is our last hope.

My F.I.L. has felt so weak since just before diagnosis and had had 3 or 4 transfusions… What is your next step/option???

Comment on How I was diagnosed with angioimmunoblastic t-cell lymphoma by Linda Nelson

Linda Nelson — Sun, 20 Sep 2009 00:21:05 +0000

Hi Sue I sure hope you are doing better and continue to do so. My husband was recently diagnosed with angioimmunoblastic as well. Only, his diagnosis did not come until after 2 years and many tests. He was diagnosed by the Mayo Clinic but just as we were going to start the CHOP treatment his base pet scan before treatment was improved from all the others so we are once again waiting as the doctor thinks the last pet scan was wrong and is going to repeat it. I would appreciate any info anyone can give me on this disease. Hang in there, Jen.

Comment on AFTER Angioimmunoblastic T-cell Lymphoma by JohnP

JohnP — Wed, 16 Sep 2009 22:22:26 +0000

I find you so inspirational! My boyfriend was diagnosed in June with “that disease”. He is going to have a bone marrow transplant in Nov. He wants to have it done. I was againist it,but his family and him are all for it. To be honest, I am scared for him. This treatment is literally going to bring him to the brink of death in order to bring him back to life….cancer FREE! Best of luck to you and your journey….I know it is not and easy one….Catherine, RI